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by lottie13
Thu Nov 07, 2013 11:55 am
Forum: Coping and support
Topic: world net day 10th november 2013
Replies: 0
Views: 880

world net day 10th november 2013

http://www.apted.fr/Pages/WNCAD2013.aspx this is a link as there are going to be a number of 'open' days forpatients suffering from neuroendocrine cancer --- NET or as unfortunately as the french prefer to call it TED this is unfortunate as google will give no help when you search for TED only NET. ...
by lottie13
Tue Nov 05, 2013 4:41 pm
Forum: Translated Documents
Topic: travel remboursements
Replies: 1
Views: 1261

Re: travel remboursements

just to update on remboursements, if you need to use the train, you cak your cpam to pay 'up front' you have to get a devis from the station, then go to your nearest office and declare that you will pay any difference back and that you agree to forward all tickets etc promptly. we have done this twi...
by lottie13
Wed Mar 27, 2013 10:47 am
Forum: Coping and support
Topic: If you need help, just ask!
Replies: 0
Views: 1071

If you need help, just ask!

I would just like to thank several people for their kindness , help and support. I am not sure it would be appropriate to name names so won't do, but in fact they know who they are. Firstly to P for being on the other end of the phone and organizing help last year when I hit rock bottom and just cou...
by lottie13
Tue Oct 30, 2012 6:19 pm
Forum: Useful Documents
Topic: translator
Replies: 3
Views: 1030

Re: translator

have replied under my other posting!
by lottie13
Tue Oct 30, 2012 6:18 pm
Forum: Cancer treatment
Topic: the continuing saga!!
Replies: 3
Views: 1060

Re: the continuing saga!!

Hi thanks for the reply. our medecin traitant finally spoke to the prof yesterday, she had made a rdv at 5pm as she was in the surgery all day with patients every 10 minutes had booked a slot, she had to ring 3 times and be told the prof was far too busy! before she got through. outcome is meeting n...
by lottie13
Mon Oct 29, 2012 3:32 pm
Forum: Useful Documents
Topic: translator
Replies: 3
Views: 1030

translator

I am trying to find a translator to help us out and act as go between between my husbands professors secretary who speaks no english and my husband who speaks very little french. I have done all the translating up to now but am suffering from stress and need to step out for a short while. I have ask...
by lottie13
Sun Oct 28, 2012 9:08 pm
Forum: Cancer treatment
Topic: the continuing saga!!
Replies: 3
Views: 1060

the continuing saga!!

My husband finished PRRT in January after a gruelling 2011. Briefly after a scan, ct, meeting with the prof, who said treatment hadnt worked, scan in Rennes, they CHOSE to use a product that was not on prescription, result eventually that husband only had main mesenteric mass that we knew about, we ...
by lottie13
Thu Jun 14, 2012 1:53 pm
Forum: Documents
Topic: Fantastic guide in english for neuroendocrine patients
Replies: 3
Views: 2279

Re: Fantastic guide in english for neuroendocrine patients

thats good news about novartis as when my husband received a long acting injection,3weeks, it was totally against novartis protocol. they insist on 2-3 weeks short acting shots first, as if you have an allergic reaction and have started straight away on the long acting you are in real trouble.I did ...
by lottie13
Thu Jun 07, 2012 11:15 am
Forum: Documents
Topic: Fantastic guide in english for neuroendocrine patients
Replies: 3
Views: 2279

Fantastic guide in english for neuroendocrine patients

A lot of this guide is specific to NET but there is also lots of other info
viewtopic.php?f=44&t=462&p=1178#p1178
by lottie13
Thu May 24, 2012 5:52 pm
Forum: Cancer treatment
Topic: cancer plan for france
Replies: 3
Views: 1363

Re: cancer plan for france

thanks for your reply, if you are interested you will see many postings from me over the years regarding my husband! he is being followed by a professor in Paris who is meant to be the best in france, I was only asking to see if anyone elses docs actually follow the cancer plan or is it just lip ser...

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