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For everyone, patients, families, friends, carers...share your methods for coping, your frustrations and seek support

Moderators: pennycsf, PaddyFrog, KarenVM87, Cathy Allen

SusieD
Posts: 2
Joined: Thu Feb 06, 2014 11:20 am

new here

Postby SusieD » Thu Feb 06, 2014 11:32 am

Hi, I'm new here and would appreciate some help. Our 27 year old daughter has advanced brain cancer and is now living with us here in France along with her 2 children so we can care for them all in our home. We would like to know anything about cancer support, treatment, financial benefits, anything we should know about. We will soon have financial difficulties running the household on just my husband's UK pension so can my daughter claim anything here? I'd like also to know which is the best consultant and hospital to take her to that specialises in tumours of the brain. She's on chemo at the moment which we get by going back monthly to the UK but we want to do this here. Our own doctor here is willing to refer her but I'm scared about changing specialists. Plus, in the UK we had a Macmillan nurse- is there the equivalent here? We are in dept 46.

pennycsf
Site Admin
Posts: 605
Joined: Sun Jan 24, 2010 7:19 pm

Re: new here

Postby pennycsf » Thu Feb 06, 2014 12:30 pm

Dear Susie
What a difficult situation for you all. I am sure we will be able to point you in the direction of some help in France through this Forum, but before doing that, there is a CSF Association which does cover the Lot as well as the Dordogne (Est). As all CSF members are volunteers that does not necessarily mean that there is anyone close at hand although they may well have a much better knowledge of help available in your area than I can have from here in the south. I suggest that you contact CSF Dordogne Est/Lot on:

06 35 90 03 41

or by e-mail on:

csfdordognelot@yahoo.com

Do let me know through the forum or by a private message whether the help you need is avaialble to you there. If it is not, then I will endeavour to answer your queries in detail. I can say that generally there has been good experiences in transferring from the NHS into the French health system with the various consultants working together. As your daughter is living with you now, I assume that she will be entitled to help through the French health system in which case she will also probably be able to claim other support from French social security.

There is no system of Macmillan nurses in France but similar treatment and care at home is available through the reseaux soins palliatifs and also hospitalisation à domicile. I do not know how well developed these are in your area, something which the local CSF will be able to tell you.

Bon courage!
Penny

KarenVM87
Posts: 123
Joined: Mon May 03, 2010 4:33 pm

Re: new here

Postby KarenVM87 » Thu Feb 06, 2014 1:13 pm

You may be eligible to financial aid from La Ligue contra le cancer. Contact your local branch. Here is the link, http://www.ligue-cancer.net/cd46/
Bonne chance.
Karen

SusieD
Posts: 2
Joined: Thu Feb 06, 2014 11:20 am

Re: new here

Postby SusieD » Thu Apr 24, 2014 12:17 am

Hi, we've got support now to help us get our daughter into the french system, thanks for the info. We went to Toulouse hospital today, got an MRI scan booked in and may be able to start on Avastin- has anyone else got experience of this? It's supposed to interfere with the blood vessels so as to starve the tumour.

pennycsf
Site Admin
Posts: 605
Joined: Sun Jan 24, 2010 7:19 pm

Re: new here

Postby pennycsf » Thu Apr 24, 2014 9:01 am

Hello Susie

If you tap in "avastin" to the search box on the forum you wiil see that two people have had it, although the information is not current. You could try PMing or emailing them? I have put a general posting, headed "Avastin", asking for info in the Cancer Treatment section and with luck that may get a response.

Pleased to read that progress is being made.

Penny :)


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