Help needed

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Harry-I
Posts: 3
Joined: Sat Apr 23, 2016 10:18 pm

Help needed

Postby Harry-I » Sat Apr 23, 2016 10:31 pm

My wife of 36 years has just been diagnosed with pancreatic cancer. Everything seems to be going so fast and she was discharged today after tests, with an appointment for whipple surgery on the 10th May in Limoges. This is so soon and there is so much conflicting information on the web. We desperately need professional and experienced advice. She feels that if she has a maximum of 5 years of intense pain and suffering, she would rather not go through with the surgery. I do agree with her. We realize that the timing prognosis is very short but is it worth prolonging life if there is pain and no quality of life.

pennycsf
Site Admin
Posts: 609
Joined: Sun Jan 24, 2010 7:19 pm

Re: Help needed

Postby pennycsf » Sat Apr 23, 2016 11:40 pm

Dear Harry
What very very sad news, you must both be in shock. And it is true that sometimes things are happening around you so fast that there seems no chance to really make a considered decision. Fortunately, with an operation scheduled for 10th May, you do both have time to sit back a little, and you can of course ask that the operation is put back to enable you both to get to grips with what is happening. It is easy to feel caught up in the system with life seeming out of your control.

As you say, there is a wealth of information on the internet, a lot of which is not helpful and can be frightening. The most reliable websites in English are Cancer Research UK and Macmillan. Here:
http://cancerresearchuk.org/
http://www.macmillan.org.uk/

Assuming that you are in the French health system, you are able to ask for a second opinion on treatment options and can request through your GP to see a specialist in the field, even if he/she is away from your area.

I don't know what your language skills are, but CSF can help you with language support if that is needed. I can also put you in touch with our trained volunteers who could give you an opportunity to talk things through. Let me know either by a post or send me a PM or e-mail.

Thinking of you both,
Penny

Harry-I
Posts: 3
Joined: Sat Apr 23, 2016 10:18 pm

Re: Help needed

Postby Harry-I » Sun Apr 24, 2016 2:39 pm

Hi Penny

I have tried to send you a pm but it does not appear and I don't think that it has gone. My apologies if you get this twice !

Thank you very much for your reply. We are slightly less panic stricken today and the overwhelming majority of our friends seem to have convinced Liz that she must fight and that giving up is not an option at this stage.

We would very much like to talk this through with a trained person as it is all so strange at the moment.

pennycsf
Site Admin
Posts: 609
Joined: Sun Jan 24, 2010 7:19 pm

Re: Help needed

Postby pennycsf » Sun Apr 24, 2016 5:17 pm

Hello Harry

I have sent you an e-mail. If you haven't received it then please post again.

Penny

Harry-I
Posts: 3
Joined: Sat Apr 23, 2016 10:18 pm

Re: Help needed

Postby Harry-I » Sun Apr 24, 2016 6:24 pm

Hi Penny

E-mail received thank you. Our phone no is 05 45 30 33 92. Our E-mail is whitesails_inthe.sunrise@yahoo.com.

Again many thanks for your help

Harry

pennycsf
Site Admin
Posts: 609
Joined: Sun Jan 24, 2010 7:19 pm

Re: Help needed

Postby pennycsf » Sun Apr 24, 2016 8:28 pm

Fine, I'll pas that on and you'll be contacted by our helpline co-ordinator, Maggie.
Thinking of you both,
Penny


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