new to the club so need advice!

Moderators: pennycsf, PaddyFrog, KarenVM87, Cathy Allen

Lisa
Posts: 7
Joined: Sun Mar 01, 2015 1:01 am

new to the club so need advice!

Postby Lisa » Mon Mar 02, 2015 4:59 pm

Hi ,
Thank you for letting me join :) I'm 44 am married with two children and live in Aveyron and originally from South Africa

I was told last week that I have breast cancer- after a small lump was discovered in my left breast during a routine mammogram and then a biopsy. I have an appointment tomorrow with the surgeon and I'm scared. With a history of breast cancer in my family (my mother had it twice first at 30 and again at 55) and my grandmother in her 60's - should I ask for a BRCA test? I just can't help but worry that if we remove this tumour then another will appear later and I could be in a constant cancer cycle - could I have a double mastectomy now? I don't know what to do or what questions to ask - all advice appreciated thank you. If anyone know about the cancer care in Villefranche de Rouergue hospital i would really like to chat with you.

pennycsf
Site Admin
Posts: 607
Joined: Sun Jan 24, 2010 7:19 pm

Re: new to the club so need advice!

Postby pennycsf » Mon Mar 02, 2015 9:33 pm

Hello Lisa,

As sorry as I am that you have had to join the Forum, I am very pleased that you have found us.

It is a very frightening experience to be diagnosed with any kind of cancer, so do not think that you are abnormal in feeling this way. I don't know how good your French is, but I am sure that your surgeon will answer all your questions. I suggest that you have someone with you at the consultation as it is often hard to retain the information and it can all seem rather overwhelming. Of course, you should ensure that your surgeon is aware of your family history. He, or your oncologist, will recommend any further tests which he feels are necessary, including a BRCA test. The fact that you have a history of breast cancer in your family does not necessarily mean that you are carrying the faulty gene. Your surgeon and oncologist will consider the type of breast cancer that you have before taking any decision.

Having a double mastectomy is a huge step and one that may well not be necessary, although the temptation now must be to get rid of the possibility of cancer returning. For the moment, I feel that you should concentrate on the immediate future, a lumpectomy, perhaps with radiotherapy, may be advised rather than a mastectomy. It is possible that any further treatment cannot be identified until after an operation to remove the lump when more thorough tests can be done to identify the type of cancer. You may be offered chemotherapy to shrink the tumour before surgery.

There are so many options it is difficult to know what you should ask. Perhaps the most important thing is to make sure you understand what has been said and that you have an opportunity to ask questions once you have taken on board the information. You should be able to call the surgeon and discuss anything you are not sure of in a few days time.

Please post again when you have had your appointment and let us know how it goes, we'll all be thinking of you,
Penny

Lisa
Posts: 7
Joined: Sun Mar 01, 2015 1:01 am

Re: new to the club so need advice!

Postby Lisa » Mon Mar 02, 2015 10:39 pm

Thank you so much for your detailed reply and sound advice Penny. I'll let you know how I got on tomorrow. :?

goldenoldie
Posts: 193
Joined: Thu Feb 11, 2010 3:11 pm

Re: new to the club so need advice!

Postby goldenoldie » Tue Mar 03, 2015 9:29 am

Hi there..like penny I am sorry you have had to contact us but so pleased you did. Just want to add..if you see this before you go today....take a notebook and pen. If you have time jot down a few key questions that are important to you. Once they have finish the interview, usually they ask if you want to ask anything..then get out your book! If they don't and have not covered the questions sit tight! and ask them if they could answer you questions.
The response maybe - as Penny says - that it will be answered later on..it is after all only your first visit. My oncologist was slightly amused when I flipped out my little book ,but he got used to saying -even after each treatment session -"and what is in your little book today?"
Good luck and do come back to us with how you get on so we can support you.

Lisa
Posts: 7
Joined: Sun Mar 01, 2015 1:01 am

Re: new to the club so need advice!

Postby Lisa » Tue Mar 03, 2015 12:39 pm

Thank you so much Goldenoldie for your message! :D I'm writting my list now and getting all my questions straight in my head - will let you know how I get on.

Lisa
Posts: 7
Joined: Sun Mar 01, 2015 1:01 am

Re: new to the club so need advice!

Postby Lisa » Thu Mar 05, 2015 1:42 am

Update on the visit to the surgeon.
A lot of my questions were answered yesterday and my fears put at ease.
It turns out that I have the rare Mucinous breast cancer and that's why it's taken so long to confirm that the biopsy was cancerous.
So I'm having the lump removed tuesday morning and should be home on Wednesday :) and will wait to see if the glands are infected or if I start with the radiation.

Thank you all so much for your amazing support and encouragement I really do appreciate it
Lisaxxx

goldenoldie
Posts: 193
Joined: Thu Feb 11, 2010 3:11 pm

Re: new to the club so need advice!

Postby goldenoldie » Thu Mar 05, 2015 8:10 am

I am SOOO pleased for you. glad your got your answers and isn't it lovely to get such prompt treatment? I hope it is reassuring for you. Keep your book with you for future use!
please keep in touch so we can support you if necessary after your operation.. your experiences may also be able to help someone else as a side benefit. good luck! :D

pennycsf
Site Admin
Posts: 607
Joined: Sun Jan 24, 2010 7:19 pm

Re: new to the club so need advice!

Postby pennycsf » Thu Mar 05, 2015 8:20 am

Hear, hear! :D Pleased that you can feel more relaxed about the situation now, the 'not knowing' is one of the worst bits. And if you can keep posting Lisa, as Goldenoldie says, it will be a huge bonus to others especially with a rarer from of cancer.

Lisa
Posts: 7
Joined: Sun Mar 01, 2015 1:01 am

Re: new to the club so need advice!

Postby Lisa » Fri Mar 13, 2015 4:56 pm

Hi, Just wanted to let you know that I'm home a little sore but otherwise good. They've removed the lump and 3 glands for testing. I have a follow up appointment on the 23rd to remove stitches, receive the results of the tests and to find out my next treatment. I have been blown away with the kindness and care that has been shown to me this past week. Everyone at the hospital was amazing :P
What was also very interesting was I told that the lump didn't show up on the mammogram at all and since no one could feel it - it was only found with the ultrasound (sonar) scan. How lucky is that?
Thank you again for all your support.

pennycsf
Site Admin
Posts: 607
Joined: Sun Jan 24, 2010 7:19 pm

Re: new to the club so need advice!

Postby pennycsf » Sat Mar 14, 2015 1:36 am

Great news :D !!!


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