Just diagnosed

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biggles
Posts: 107
Joined: Mon Jan 25, 2010 3:16 pm

Re: Just diagnosed

Postby biggles » Thu May 25, 2017 4:38 pm

Hi Cheryl, thanks for your story, it is always helpful to know what to expect........the unexpected is always a worry.

It sounds as if it all went according to plan and good news about the ganglions :D Fingers crossed now for the follow up. Take it easy, not only was it a long day but it will have been an emotionally harrowing few months too.

Cheryl
Posts: 14
Joined: Tue May 02, 2017 4:04 pm

Re: Just diagnosed

Postby Cheryl » Mon Jun 12, 2017 5:58 pm

I saw the surgeon last Thursday and it was good news in that they'd got all the cancer. I've got an appointment with a radiologist on 11th July, then there will be six weeks of radiotherapy. What does this involve? Are the side effects tiredness and possible burning? I was also reading about the hormone therapy which will start after the radiotherapy, and I have to say that the side effects sound pretty depressing. Am I likely to get side effects, and which are the usual ones? My husband said that I shouldn't have researched, but I think forewarned is best!

KarenVM87
Posts: 129
Joined: Mon May 03, 2010 4:33 pm

Re: Just diagnosed

Postby KarenVM87 » Wed Jun 14, 2017 11:39 am

Wow great news, you must be over the moon. The question regarding side effects of tiredness and possible burning you need to discuss with your radiologist. And regarding HRT again talk to your specialist. I am sorry but do not have any personal experience regarding any of your questions, but I guess side effects differ from person to person.

Cheryl
Posts: 14
Joined: Tue May 02, 2017 4:04 pm

Re: Just diagnosed

Postby Cheryl » Thu Jun 15, 2017 5:34 pm

Yes, I'm very glad that the operation went to plan! I'll no doubt find out answers to my questions when I see the doctor in the radiotherapy dept next month.

KarenVM87
Posts: 129
Joined: Mon May 03, 2010 4:33 pm

Re: Just diagnosed

Postby KarenVM87 » Sat Jun 17, 2017 10:12 am

Bonne chance Cheryl.

biggles
Posts: 107
Joined: Mon Jan 25, 2010 3:16 pm

Re: Just diagnosed

Postby biggles » Sat Jun 17, 2017 1:41 pm

Hello Cheryl,
What an excellent result, I am so pleased for you. My experience of breast cancer treatment was some years ago but I can tell you that, for me, radiotherapy was tiring because it was tedious! Every day (Sat and Sun excluded) for five weeks, in my case, seemed an eternity.

On burning, your nurse or technician will explain how to care for your skin and, if they don"t say anything, I suggest you ask about what soap or other products you should use. I didn't have any problem with burning, a slight soreness at the end of the five weeks. The procedure itself is very quick, was very efficiently done at my hospital, but uncomfortable as I had to have my arm in a difficult position.

On the hormone therapy, I believe that, as Karen says, side effects differ from person to person. I had the standard ones which are really the bringing on of an early menopause, hot flushes being the main one. I also had achy joints which is very common and my tablets were changed to another type to lessen this.

Hope that helps a bit and GOOD LUCK!!!! ;)

KarenVM87
Posts: 129
Joined: Mon May 03, 2010 4:33 pm

Re: Just diagnosed

Postby KarenVM87 » Sun Jun 18, 2017 7:45 am

Thank you Biggles, its always better to have someone's personal experience.

Cheryl
Posts: 14
Joined: Tue May 02, 2017 4:04 pm

Re: Just diagnosed

Postby Cheryl » Fri Jun 30, 2017 7:23 am

Hi Biggles,
Many thanks for your reply - sorry to be slow to respond, but for some reason I missed any notification. I think it's the length of time (and distance) which is worrying me the most, plus I wish it would just start now! it's over 5 weeks since my operation, another couple of weeks before I see the radiotherapist and then I don't know how long before it starts. It feels like it's hanging over me.
At least your side effects sound minimal - I can put up with that!
Thanks again.
Cheryl

KarenVM87
Posts: 129
Joined: Mon May 03, 2010 4:33 pm

Re: Just diagnosed

Postby KarenVM87 » Fri Jun 30, 2017 7:56 am

I can understand your worries and probably some frustration in the time gap between your operation and before the second part of your journey. I have no idea if this is the norm, but maybe the area where you were operated needs to heal a little. Good luck Cheryl. Karen

biggles
Posts: 107
Joined: Mon Jan 25, 2010 3:16 pm

Re: Just diagnosed

Postby biggles » Fri Jun 30, 2017 12:17 pm

Hi Cheryl,
It is likely that Karen is right - unless there is a real degree of urgency - there always seems to be a delay between an operation and radiotherapy. I believe that is to ensure that the skin in the operated area has healed and also that your body has recovered from the op itself.

In my case, I had chemotherapy first but there was still a delay of 12 weeks between the end of the chemo and start of the radiotherapy. That was to allow my body to get over the chemo effects, the op had long since healed.

If this is really causing you a lot of worry, could you talk to your GP about that? He/she could contact your oncologist and see if the appointment could be brought forward, at least then you would know when the treatment would be starting. It is always easier, in my experience, to handle the known rather than the unknown!

Very best wishes ;)


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