cancer plan for france

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lottie13
Posts: 113
Joined: Mon Feb 22, 2010 1:23 pm

cancer plan for france

Postby lottie13 » Wed May 23, 2012 3:58 pm

In practice does anyone finds this works.
I ask because my husbands prof rang to say, I am starting you on combo chemo next week for 4 months, if it doesnt work then we will re visit symptom control as there is no other treatment.
No meeting, no discussion, no mention of side effects, no talk of prognosis with or without, no offer of any support services.
chemo to be done at home.
went to see our gp, she had received no scan results or letter, folder is out of date by 3months.
The support group for my husbands cancer, apted, who you have to pay 23euros a year to be in! recently attended a national day for oncologie nurses, so I contacted them and asked how we could find one to assist my husband during his chemo, answer see your gp.
so we did , answer we don't have any in this area.
So how can we make sure that the plan is being followed.
I have been told I am guilty of harassing when I chase anything up.
Is my husband really just meant to roll over, if he had he wouldn't be here as Vannes hospital had no idea how to treat him!

termietermite
Posts: 35
Joined: Mon Aug 22, 2011 5:35 pm
Location: Sarthe (72)
Contact:

Re: cancer plan for france

Postby termietermite » Thu May 24, 2012 5:40 pm

There is a guy on another forum I am on* who sent me some info' about specialist cancer centres here. If your local hospital is being so offhand then you have as much right to a second opinion as anybody. In your shoes I'd be back to my gp to ask if you can go elsewhere. That just ain't good enough, imho. There are people on here with much broader experience than mine but I've been offered lots of help from many quarters and the day I was diagnosed, the psycho' turned up with no prompting from me.

Have you tried the Ligue Contre le Cancer here or are you not confident enough in the language? There's a centre here in Le Mans with a whole raft of support services, including a through the night councelling option via the web. Sounds really grim where you are. Bon courage to you both.

*Edit - in fact I see that Evaniers has already mentioned him in the gp thread!

lottie13
Posts: 113
Joined: Mon Feb 22, 2010 1:23 pm

Re: cancer plan for france

Postby lottie13 » Thu May 24, 2012 5:52 pm

thanks for your reply, if you are interested you will see many postings from me over the years regarding my husband! he is being followed by a professor in Paris who is meant to be the best in france, I was only asking to see if anyone elses docs actually follow the cancer plan or is it just lip service to what seems like a great plan.

termietermite
Posts: 35
Joined: Mon Aug 22, 2011 5:35 pm
Location: Sarthe (72)
Contact:

Re: cancer plan for france

Postby termietermite » Thu May 24, 2012 6:06 pm

My appologies. I visit but rarely (I try not to be too "cancer minded" when in remission - if that doesn't sound too selfish!)

It's odd though because my gynae', who did all my surgery and who does all my follow-ups (follows-up?) was quite surprised that the onc' had not written one thing on my plan - at least you have one! But I did get a lot more peripheral support than you o/h sounds as though he is getting from this one post.


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